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Rare Disease Day

Rare Disease Day is 28th February – and whilst we all know that 22q is NOT rare, this is an opportunity to bring 22q some media attention. Your short video clips, stories, poems and pictures would be wonderful to see. I am sure the iconic John Lennon record will feature too!

 

If you have something that you’d like to contribute please get in touch with us at Max Appeal so that we can put all our families together in a single approach to Genetic Alliance.

Please email us at info@maxappeal.org.uk

https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/rare-disease-day-2025/

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24 November

Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm

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22 November

The 6th European 22q11 Conference