Testimonials
I’ve donated it as a thank you for all that Max Appeal does for my family. We benefit from the advice and support. I often direct health and education towards your resources. We have been fortunate enough to go on Winston Lodge residential this year, it made such a difference to my daughter whose 35, granddaughter 12 and grandson 8 who all have di George and have very different challenges. You have given them the opportunity to make friends and have fun in a safe environment. Time away from the real world which has proven tricky at times to navigate with curve balls in both physical and mental health.
Deborah Riley
I found Max Appeal 16 years ago when she was diagnosed with 22q
The wealth of knowledge from Julie Wootton, trustees and members has been invaluable and I would just like to say THANK YOU xxx
Amanda (Aug 21)
We appreciate how much Max Appeal have done and all the other 22q families for their eye opening information and experiences we read about on Facebook. Wow, most have had such really difficult beginnings, and all that worry (like us) they must have for the future. I hope my story shows that with the right help and expertise we have in our schools today, that their kids will be able to go on and do truly amazing things and live a good and decent life. (Brian’s Story)
Janice.
I’m not sure if I should put this in writing elsewhere but I want to say a HUGE thank you to Max Appeal for the wealth of information, advice and guidance you provide. We've just had our annual visit with the paediatrician and last time she knew very little about 22q but in the interim seems to have absorbed the extensive info from Max appeal as well as speaking to some advisors. She has put in place all the annual routine assessments (blood tests etc) for Em and seemed something of an expert on her condition. Such a change from last year and she said it was all thanks to Max appeal. So thank you for everything you do, it really makes such a difference. Amanda Feb 2021
‘Without Max Appeal, I wouldn't of coped, mentally, and I was heading down a path, of taking my own life. They helped me, veering me onto another, and I've made the best mates. We need Max Appeal xxxx❤💙’
"I would like to take this time to thank Max Appeal because without finding this group I would be feeling so very alone and confused. THANK YOU MAX APPEAL."
"Joshua is 10 next week and has really done well despite numerous operations and more surgery planned later this year. I have seen him grow up and cope with his condition and overcome many of the challenges such children face and the information and support that Max Appeal provided has been invaluable not only to Josh but to his parents. Thanks for all the good work."
"Thank you yet again to Max Appeal for the handbook, gave it to zak's school and they are DiGeorge experts already."
"Thanks again to Max Appeal Zak's educational psychologist said she contacted max appeal with some questions from booklet and wanted info on sources of educational info. She said how helpful you were and big thanks from me because max appeal is keeping me sane through the sen process"
"They (Max Appeal) have been a God send to me through the statement process, especially when you have strangers telling you they know your child better than you do, its reassuring to read others stories on here, it seems to give a bit of empowerment. Just received the draft statement, and he was awarded 25 hours of 1to1 help and that he needed a high level of adult support. The final statement is due at the end of July. Quite a good result at our end, I was expecting it to be a nightmare, but when you are armed with facts it makes it much easier."
"still getting to grasp with everything surrounding DiGeorge, as i only found out i had it aged 30 when i had my little boy who has it too. Your facebook page (Max Appeal - The Official group) has been a life safer thanks for all your hard work."
"Thank you. This board (Max Appeal - The Official Group on Facebook) is my lifeline" x Justine
"...we were lucky. We had 115 days with Max, and saw him smile, and know who he was, and we learned about ourselves and the people around us..."