Upcoming Events
Rare Disease Day
Rare Disease Day is 28th February – and whilst we all know that 22q is NOT rare, this is an opportunity to bring 22q some media attention. Your short video clips, stories, poems and pictures would be wonderful to see. I am sure the iconic John Lennon record will feature too!
If you have something that you’d like to contribute please get in touch with us at Max Appeal so that we can put all our families together in a single approach to Genetic Alliance.
Please email us at info@maxappeal.org.uk
https://geneticalliance.org.uk/campaigns-and-research/rare-disease-day/rare-disease-day-2025/
22q At the Zoo
22q At the Zoo Awareness Day 18th May 2025
This year celebrates the 15th Anniversary of 22q at the Zoo.
Come along to Twycross Zoo, share your stories, make new friends and spread awareness.
Tickets are £10 each, carers are free (with evidence paperwork|) & under 3 free.
Please use this booking form to order tickets = Zoo 2025 Booking Form
Your host will meet you at a designated time and place and provide entrance details and tickets.
22q at the Zoo – Worldwide Awareness Day® launched for the first time on May 22, 2011. It was originally planned as a Philadelphia (USA) event to promote friend raising and awareness. Thanks to families, professionals and other support organizations around the globe this “local” function morphed into a worldwide phenomenon where people gathered at their closet zoo for a day of fun and solidarity sporting our unique 22q at the Zoo T-shirts. While adults socialize, children enjoy the animals,. During all of this fun, teams of volunteers distribute fact sheets informing the public about 22q11.2 Deletion and Duplication Syndromes.
Tshirts available in a variety of sizes and also 2 designs. Our original Maxi Bear and our new logo Tshirts. These are not the official Zoo Tshirts, these are Max Appeal Tshirts.
Great North Run 2025
The date for the 2025 run is Sunday 7th September, the entry fee is £25.00 and the minimum sponsorship target is £250.00.
Max Appeal has secured 35 guaranteed charity places for next years Great North Run, to be held on Sunday 7th September. To secure your place please complete the entry form below and email back to paul@maxappeal.org.uk
Please ask any friends or family if they will consider taking part too. Make it a family affair !
Max Appeal will provide a free running vest and fundraising pack, pre and post race meet up opportunities and support.
It's a fun weekend too for a good cause and will help us continue our work supporting families affected by 22q11.
The 6th European 22q11 Conference
We are pleased to remind you that the next European conference will take place in Brussels on November 22 and 23, 2025.
This conference aims to unite European families, clinicians, scientists, and researchers to share knowledge and expertise about 22q11 syndrome and foster meaningful connections.
More information will be available soon!