Upcoming Events
Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm
Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm
Our AGM for the financial year 2022 – 2023 is being held via zoom at the beginning of Martin’s Quiz Night on Sunday 24th November 2024 at 6.30pm.
All the information is in the attached pdf file, where you can find out lots of fascinating information about activities From Sept 2022 to August 2023.
If you can’t make the on line AGM then we would encourage you to participate via survey monkey, there is a hyperlink and a QR code, or good old fashioned post!
Clearly, no-one would want to miss the AGM or the quiz night. The AGM only involves 3 questions and there are no wrong answers.
Quiz - Via Zoom https://us02web.zoom.us/j/88618795075?pwd=zPTzl5rDmDe2meldtjDyuErrH4PM8N.1
If you think you have something to offer the charity and would like to join the trustees, then please do complete the section at the end of the voting slip, or get in touch of you’d like to know more about what is required of trustees. Attached below.
Thank you.
Julie Wootton
Chairman of the Board of Trustees.
Great North Run 2024
Great North Run 2024
We are pleased to report that we have secured our guaranteed charity package of 35 places for this years Great North Run on Sunday 8th September. The target sponsorship to be raised is £250. To secure your place email paul@maxappeal.org.uk for an entry form.
Cardiac Transition Event
Patient Information event which is open to anyone living with congenital heart disease in Scotland to attend.
29th August 2024 Golden Jubilee Conference Hotel. Registration from 6-6.30pm and finishing at 8pm.
Beardmore Street
Glasgow
G81 4SA
Wiston Lodge, Glasgow - 15th to 18th July 2024
Wiston Lodge, Glasgow - 15th to 18th July 2024
2023 was the first time we used this venue (though we have had previous events elsewhere near Glasgow) and the families that attended had a fantastic time, great accommodation with plenty of activities in the grounds of the Lodge, and on-site friendly and helpful staff. We are really looking forward to seeing this year’s event being a roaring success.
Cranham Camp, Gloucestershire - 24th to 27th May 2024
Cranham Scout Camp, Gloucestershire - 24th to 27th May 2024.
This is a regular event in the Max Appeal diary, building year on year. Lots of activities for children over the age of 8 and young adults. This year we have a falconry experience already booked.
A youth activity weekend for 7 years & upwards based in the beautiful Cotswold Hills to help the young people relax and enjoy some time together and it is an opportunity to meet other children and young people affected by 22q.
Cost: £55, plus £10 per additional adult
The theme of the weekend is building confidence and self-esteem, working in teams and having fun. We are providing activities for all abilities in a safe environment. Activities include; archery, shelter building, out door cooking, grass sledging, traverse wall, team games, dam building, Explorers walk, air rifles and challenge course.
Note:
Bookings close 3rd May, or sooner if camp is full.
Once your booking is confirmed please can you forward a completed medical form to Mark Tripp Freepost Max Appeal or email to mark@maxappeal.org.uk
For further information, please email info@maxappeal.org.uk
22q at the Zoo 19th May 2024
19th May 2024
22Q At The Zoo is a world wide event organized each year since 2011.
22q families gather at different zoo’s around the world.
This very special event gives families touched by 22q issues a chance to socialize, network and raise the public profile of the common but poorly recognized conditions of the 22q syndrome.
Hi Everyone.
Our hosts and zoo locations for this year are as follows:
Chester Zoo - Paul Wootton https://www.chesterzoo.org/
Paignton Zoo - Tracey Hennighan https://www.paigntonzoo.org.uk/
Marwell Zoo - Penny Biggs https://www.marwell.org.uk/
Five Sisters Zoo - Natasha Earle https://fivesisterszoo.co.uk/
Meet at the main gate if you wish to go in with other families.
Each host will recommend a lunch time meetings spot for around 1pm for families to meet and catch up.
Please drop us an email if you would like to attend, with how many in your party and contact details. This will help us keep you updated on the day of any changes or updates.
Pricing available on the individual zoo webpage.
Red Max Appeal T shirt booking form - https://cm.maxappeal.org.uk/payonline/22qzoo2024tshirt/
TSHIRT ORDER CLOSES ON 30TH APRIL
22q11 syndromes All-Party Parliamentary Group AGM
22q11 syndromes All-Party Parliamentary Group is holding its AGM on Wednesday 20th March 2024, 2.00pm – 4.00pm
Please write to your MP. You could also email or phone them. Don’t know who your MP is? Visit: Find your MP - MPs and Lords - UK Parliament
Dear……
The 22q11 syndromes All-Party Parliamentary Group is holding its AGM on Wednesday 20th March 2024, 2.00pm – 4.00pm. I would ask that you attend this meeting to represent me, as one of your constituents, and a family affected by 22q11DS. The work of the APPG, chaired by David Duguid MP, is invaluable to supporting the interests of my family and all those affected by 22q11DS
I would be pleased to hear from you that you will be able to attend.
If we have any Max Appeal members who would like to attend or would like more information, please email julie@maxappeal.org.uk
Max Appeal Family Quiz Online
In December Clare ‘Bear’ Mcpherson sadly lost her battle with breast cancer, her family lost an amazing mother, daughter and sister and Max Appeal lost one of its most popular members, Clare was an amazing lady who was always to be found at the centre of any fun, she made many friends at Max Appeal both in person and online and it was through our online events that we discovered Clare was a quiz master, throughout Covid and subsequently after she attended virtually all of our Zoom quizzes, winning most whilst having fun singing and dancing along to the music.
We were grateful that even during her darkest days Clare was able to find comfort in joining us for our Xmas quiz, she won it of course and now it is time for Max Appeal to honour Clare with a special quiz night on Sunday Feb 25th at 7pm in memory of our beloved friend.
Zoom Link
https://us02web.zoom.us/j/85015010584?pwd=ME5mZm0xaFVJc3QrWXdEVmNsSzQ0Zz09
Meeting ID: 850 1501 0584
Passcode: 024194
Cranham 2024 Camp Question
Zoom Invite to discuss Cranham Camp
Come and join the organisers on this special zoom meeting to discuss all things Cranham
If your child is aged 7plus and you want to know about the Max Appeal Camp then please join us online for a special meet and greet followed by a Q&A session where we can ask any questions you have about the weekend,
All members are welcome to join us but this event is especially for those who have never attended before and would like more information about what a wonderful weekend to expect.
Zoom meeting Wednesday 21st Feb 6pm-7pm
https://us02web.zoom.us/j/86466149302?pwd=YzBuUi9pRzRYSDNzZkN6T3hQTmVoZz09
Meeting ID: 864 6614 9302
Passcode: 520325
22q11 European Conference in Dublin
5th European 22q11 Conference
We are pleased to announce that the 5th European Conference on 22q11 will be held in Dublin on November 18th and 19th, 2023. This conference aims to bring together European families, clinicians, scientists, and researchers to share knowledge and expertise about 22q11 syndrome and foster connections. The conference will feature over 20 speakers who will cover various themes related to 22q11 syndrome.
This 22q11 conference will be hosted in Dublin for the second time and this year’s event will take place at the historic Hyatt Centric Hotel in The Liberties area of Dublin.
You can find more information https://22q11europe.org/22q11-european-conference-in-dublin/
Great North Run 2023
We are pleased to report that we have secured our guaranteed charity package of 35 places for next years Great North Run on Sunday 10th September. The target sponsorship to be raised is £250 and no entrance fee this year. To secure your place email paul@maxappeal.org.uk for an entry form.
If anyone is mad enough to join us in 2023 and run with the Max Appeal Express please let Mark or Paul know. info@maxappeal.org.uk
Scottish Outdoor Activity Camp, for those affected by 22q11.2 Syndrome
When; 17th -20th July, 2023 (3 nights)
Where; Wiston Lodge, an Outdoor Learning and Education Centre, Biggar, Scotland
Welcome to Wiston Lodge - Wiston Lodge
Suggested age range; 7- 25 years, Ten places available (with one accompanying parent / carer).
We will be camping and using a small number of cabins. Tents provided, if you have your own tent please bring it. Meals provided.
Activities. Instructor led, all equipment provided, using the outdoors with the opportunity to experience of wide range of activities for fun, confidence building, working in teams. Meet other children and families affected by 22q11.
A small charge for each child £65 and accompanying parent £10. You will need a sleeping bag and suitable clothes for the outdoors, a suggested kit list will be provided.
Please email claire@maxappeal.org.uk if you are interested in attending by 19th June.
Family Quiz Night
Max Appeal Online Family quiz. If you haven't played before the more the merrier, the quiz is about 45 minutes long and is suitable for all ages, it's a great opportunity for a catch up with plenty of laughs - email mark@maxappeal.org.uk for a Zoom invite
Kiltwalks 2023
The best and cheapest way to raise funds for your chosen charity, Max Appeal.
Take 23, 14 or 3 miles.
Join us on a Kiltwalk, raise funds for YOUR chosen charity and they will receive up to 125%* of fundraising.
Glasgow 30th April
Aberdeen 4th June
Dundee 20th August
Edinburgh 17th September
