Annual General Meeting F/Y 2022-2023 & Quiz Night Sunday 24th November 2024 at 6.30pm

Our AGM for the financial year 2022 – 2023 is being held via zoom at the beginning of Martin’s Quiz Night on Sunday 24th November 2024 at 6.30pm.

All the information is in the attached pdf file, where you can find out lots of fascinating information about activities From Sept 2022 to August 2023.

If you can’t make the on line AGM then we would encourage you to participate via survey monkey, there is a hyperlink and a QR code, or good old fashioned post!

Clearly, no-one would want to miss the AGM or the quiz night. The AGM only involves 3 questions and there are no wrong answers.

Quiz - Via Zoom https://us02web.zoom.us/j/88618795075?pwd=zPTzl5rDmDe2meldtjDyuErrH4PM8N.1

If you think you have something to offer the charity and would like to join the trustees, then please do complete the section at the end of the voting slip, or get in touch of you’d like to know more about what is required of trustees. Attached below.

Thank you.

Julie Wootton

Chairman of the Board of Trustees.

Max Appeal Annual General Meeting F/Y 2022-2023

Great North Run 2024

We are pleased to report that we have secured our guaranteed charity package of 35 places for this years Great North Run on Sunday 8th September. The target sponsorship to be raised is £250. To secure your place email paul@maxappeal.org.uk for an entry form.

Great North Run 2024

We are pleased to report that we have secured our guaranteed charity package of 35 places for this years Great North Run on Sunday 8th September. The target sponsorship to be raised is £250. To secure your place email paul@maxappeal.org.uk for an entry form.

Patient Information event which is open to anyone living with congenital heart disease in Scotland to attend.

29th August 2024 Golden Jubilee Conference Hotel. Registration from 6-6.30pm and finishing at 8pm.

Beardmore Street

Glasgow

G81 4SA  

Download Invite here

19th May 2024

22Q At The Zoo is a world wide event organized each year since 2011.

22q families gather at different zoo’s around the world.

This very special event gives families touched by 22q issues a chance to socialize, network and raise the public profile of the common but poorly recognized conditions of the 22q syndrome.

Hi Everyone.

Our hosts and zoo locations for this year are as follows:

Chester Zoo - Paul Wootton https://www.chesterzoo.org/
Paignton Zoo - Tracey Hennighan https://www.paigntonzoo.org.uk/

Marwell Zoo - Penny Biggs https://www.marwell.org.uk/
Five Sisters Zoo - Natasha Earle https://fivesisterszoo.co.uk/

Meet at the main gate if you wish to go in with other families.
Each host will recommend a lunch time meetings spot for around 1pm for families to meet and catch up.

Please drop us an email if you would like to attend, with how many in your party and contact details. This will help us keep you updated on the day of any changes or updates.

Pricing available on the individual zoo webpage.

Red Max Appeal T shirt booking form - https://cm.maxappeal.org.uk/payonline/22qzoo2024tshirt/

TSHIRT ORDER CLOSES ON 30TH APRIL

22q11 syndromes All-Party Parliamentary Group is holding its AGM on Wednesday 20th March 2024, 2.00pm – 4.00pm

Please write to your MP. You could also email or phone them. Don’t know who your MP is? Visit: Find your MP - MPs and Lords - UK Parliament

Dear……

The 22q11 syndromes All-Party Parliamentary Group is holding its AGM on Wednesday 20th March 2024, 2.00pm – 4.00pm. I would ask that you attend this meeting to represent me, as one of your constituents, and a family affected by 22q11DS. The work of the APPG, chaired by David Duguid MP, is invaluable to supporting the interests of my family and all those affected by 22q11DS

I would be pleased to hear from you that you will be able to attend.

If we have any Max Appeal members who would like to attend or would like more information, please email julie@maxappeal.org.uk

In December Clare ‘Bear’ Mcpherson sadly lost her battle with breast cancer, her family lost an amazing mother, daughter and sister and Max Appeal lost one of its most popular members, Clare was an amazing lady who was always to be found at the centre of any fun, she made many friends at Max Appeal both in person and online and it was through our online events that we discovered Clare was a quiz master, throughout Covid and subsequently after she attended virtually all of our Zoom quizzes, winning most whilst having fun singing and dancing along to the music.

We were grateful that even during her darkest days Clare was able to find comfort in joining us for our Xmas quiz, she won it of course and now it is time for Max Appeal to honour Clare with a special quiz night on Sunday Feb 25th at 7pm in memory of our beloved friend.

Zoom Link

https://us02web.zoom.us/j/85015010584?pwd=ME5mZm0xaFVJc3QrWXdEVmNsSzQ0Zz09

Meeting ID: 850 1501 0584

Passcode: 024194

Zoom Invite to discuss Cranham Camp

Come and join the organisers on this special zoom meeting to discuss all things Cranham

If your child is aged 7plus and you want to know about the Max Appeal Camp then please join us online for a special meet and greet followed by a Q&A session where we can ask any questions you have about the weekend,

All members are welcome to join us but this event is especially for those who have never attended before and would like more information about what a wonderful weekend to expect.

Zoom meeting Wednesday 21st Feb 6pm-7pm

https://us02web.zoom.us/j/86466149302?pwd=YzBuUi9pRzRYSDNzZkN6T3hQTmVoZz09

Meeting ID: 864 6614 9302

Passcode: 520325

We are pleased to report that we have secured our guaranteed charity package of 35 places for next years Great North Run on Sunday 10th September. The target sponsorship to be raised is £250 and no entrance fee this year. To secure your place email paul@maxappeal.org.uk for an entry form.

If anyone is mad enough to join us in 2023 and run with the Max Appeal Express please let Mark or Paul know. info@maxappeal.org.uk

Max Appeal Online Family quiz. If you haven't played before the more the merrier, the quiz is about 45 minutes long and is suitable for all ages, it's a great opportunity for a catch up with plenty of laughs - email mark@maxappeal.org.uk for a Zoom invite

Ride London & raise money for Max Appeal.

Max Appeal has secured 5 spaced. We if you could please raise a minimum of £500 in donations. Max Appeal can supply you with a cycle shirt and other fund raising merchandise. Please contact paul@maxappeal.org.uk to register your interest.

RideLondon, the world’s greatest festival of cycling, will return in 2023. It will be the 10th anniversary of the hugely popular event, which was established by the Mayor of London in 2013 as an Olympic legacy event from the 2012 London Games.

A new one-year agreement with Essex County Council brings RideLondon back to the county on Sunday 28 May following the successful first year of the partnership in 2022.

The festival will feature the iconic RideLondon-Essex 100-mile challenge, along with the RideLondon-Essex 60 and 30-mile rides and the ever-popular RideLondon FreeCycle, which gives riders of all ages and abilities a rare chance to cycle on traffic-free roads in central London.

More than 22,000 participants took part in the RideLondon-Essex 100, 60 and 30-mile rides, which started in central London, headed out to Essex and then returned for a finish at Tower Bridge, while many thousands more took part in RideLondon FreeCycle in the city.

https://www.ridelondon.co.uk/news-and-media/latest-news/RideLondon-Essex-returns-in-2023

22Q At The Zoo is a world wide event organized each year since 2011.

22q families gather at different zoo’s around the world. Max Appeal will be hosting one this year at the Birmingham Wildlife Conservation park in the UK.

This very special event gives families touched by 22q issues a chance to socialize, network and raise the public profile of the common but poorly recognized conditions of the 22q syndrome.

This year we have decided to hold one main Max Appeal 22q at the Zoo event, at

Birmingham Wildlife Conservation Park

Birmingham Wildlife Conservation Park is home to a unique collection of animals from across the world, including Red Pandas, lemurs, reptiles, meerkats, otters, birds, wallabies and a large collection of monkeys.

Some of our animals are endangered in the wild and we play an important role their species’ conservation.

You can chose to book your own tickets, or we can prebook them for you using the attached booking form on the link below:

22q At The Zoo Booking form

Carers free whilst supporting the person you care for with DLA proof.

Adults £7.50

Senior citizens, students, and Passport to Leisure holders £5.70

Children aged 3 to 15 £3.75

Children under 3 Free

Family Day Ticket (2 adults and max 3 children aged 3 to 15 years) £24.50

Family Day Ticket (1 adult and max 3 children aged 3 to 15 years) £17.50

There is parking on site and around the area.

Red Max Appeal T shirt’s can also be purchased using this link:

Tshirt order form

As always, you can also organise your own venue if it’s more suitable to your needs and location. We can help promote and advertise this for you.

Any queries, please email me at steph@maxappeal.org.uk

22q at the Zoo

Do you know a child with a heart condition who loves adventure and challenges?

https://chfed.org.uk/family-day-at-whitemoor-lakes-may-20th-2023/?fbclid=IwAR1rxepSmrGzmdL52rNCIuKZXA2rd-8-8u1rdkaPA-imjECh7ZwFkjSm1fk

Then they are invited to attend the CHF activity day on May 20th at Whitemoor Lakes, near Lichfield and can bring along the whole family, (two adult parent or carers plus siblings).

There will be a range of indoor and outdoor activities during the course of the day and lunch and refreshments will be provided (dietary needs will be catered for).

Activities planned will include archery, circus skills, canoeing, abseiling plus a challenge course. Children over five years of age can join in the challenges and there will be special activities arranged for those under-fives.

There will be opportunity to meet some of the CHF team, find out a bit more about what we do and how we can help and for parents and carers to meet each other during the breaks and over lunch.

Places are limited so book early. If you have any questions please contact joanna@chfed.org.uk or phone 0300 561 0065.

The AJ Bell Great Birmingham Run is the Midlands’ biggest and best running event, with thousands of Brummie runners taking to the streets every year to challenge themselves and raise cash for charity. There’s everything you’d expect from a Great Run – notorious start line hype, top on-route entertainment and an event village that feels more like an after party – but the carnival atmosphere and the passion and spirit of the runners is all Birmingham. Expect inspiring sights, iconic landmarks and incredible support all along the 10k and half marathon route.

Great Birmingham Run entries are open to runners aged 15+ (10k) and 17+ (Half marathon) on the day of the event.
Click here for full information.
Entry price Includes booking fee (£2 per entry).

Max Appeal Online Family quiz. If you haven't played before the more the merrier, the quiz is about 45 minutes long and is suitable for all ages, it's a great opportunity for a catch up with plenty of laughs - email mark@maxappeal.org.uk for a Zoom invite

Sunday from 19:00 -20:00
Duration: 1 hr

Max Appeal Family quiz. If you haven't played before the more the merrier, the quiz is about 45 minutes long and is suitable for all ages, it's a great opportunity for a catch up with plenty of laughs - email mark@maxappeal.org.uk for a Zoom invite.

Sunday from 19:00 -20:00
Duration: 1 hr

Max Appeal Family quiz. If you haven't played before the more the merrier, the quiz is about 45 minutes long and is suitable for all ages, it's a great opportunity for a catch up with plenty of laughs - email mark@maxappeal.org.uk for a Zoom invite.

Why not run The Yorkshire Marathon in aid of Max Appeal.

The Yorkshire Marathon has been a monster success since day one. In many ways it’s the jewel in the White Rose County's sporting crown.

We like to think every element of The Yorkshire Marathon is charged with Yorkshire Spirit. Since the inaugural event in 2013, the event has got bigger and bigger.  Every year, thousands of runners of all abilities take to its truly breathtaking course.

But you’ll never be far from the locals who will be out in force to cheer you along. The event is now such a global draw that spectators come from across the world to be part of the experience and to add their support.

As you head along University Road to the finish, remember; it’s tradition to "do the Y" as you cross the line. Yorkshire, Yorkshire, Yorkshire!

Whether you’re aiming to smash your PB or just looking to cross the finish line, the Yorkshire Marathon is the perfect experience for beginners and experienced athletes alike.

https://www.runforall.com/events/marathon/yorkshire-marathon

Join #maxappeal and run in one of the most respected marathons of all time.

The TCS London Marathon 2022 is THE event of the year.

We’re incredibly excited to be able to offer two runners the opportunity to take part this autumn, to help support and improve lives of 22q11 families.

Please email paul@maxappeal.org.uk to register your interest.

https://www.tcslondonmarathon.com/

Max Appeal has secured 35 guaranteed charity places for next years Great North Run, to be held on Sunday 11th September. To secure your place email paul@maxappeal.org.uk for an entry form.

Max Appeal has secured 35 guaranteed charity places for next years Great North Run, to be held on Sunday 11th September. To secure your place email paul@maxappeal.org.uk for an entry form.

Max Appeal STILL has 20 places available for the Great North Run. It's one of our biggest annual fundraisers! We need to fill the places in the next 2 weeks or we will lose the places.

Please ask any friends or family if they will consider taking part and email paul@maxappeal.org.uk, asap.

Max Appeal will provide a free running vest and fundraising pack, pre and post race meet up opportunities and support.

It's a fun weekend too for a good cause and will help us continue our work supporting families affected by 22q11.