Consent Form

 Link to the Max Appeal Consent Form

Thank you for sharing your story with us. Real-life stories are a vital tool for helping raise awareness of genetic, rare and undiagnosed conditions. If you agree, your story and any accompanying photos/videos will be published on our website and promoted via our newsletters and social media channels. We will only use your photos/videos where you have expressly permitted us to do so.  A copy of the story and accompanying photos/videos will be kept securely in our password protected files in accordance and compliance with the GDPR guidelines (the General Data Protection Regulation). Your contact details will be held on our secure database.

 We will not share your story or photographs/videos with anyone else to publish or use without asking your permission first, but please be aware that once they are in the public domain we cannot stop other people from sharing or linking to them from their websites and/or social media.

 Your privacy is very important to us. We may edit your story and photos/videos to remove any personal details (such as dates of birth or names badges).  If you would prefer, you can remain completely anonymous or choose to use different names in your story. You do not have to provide photographs/videos if you do not wish to.

 You can ask us to stop using your photo/video or story at any time by emailing info@maxappeal.org.uk and we will remove it from our website within seven working days.  We will not however be able to retrospectively remove it from newsletters that have already been sent out or social media posts that have already been published so we cannot guarantee it will never be seen again.

 For more information about how we keep your data safe please see our privacy policy:

https://www.maxappeal.org.uk/privacy-policy?rq=privacy

 If you have any questions, please email info@maxappeal.org.uk