"A Rare Find" | Narrated by Robert Webb | Newborn Screening Collaborative
A Rare Find is a comedy short film with a difference...as it hopes to raise awareness and start conversation surrounding newborn screening, the blood spot/heel prick test*, and the desperate need for positive progress within the current UK newborn screening programme (which at present, screens for only 9 conditions, for context the USA screen for up to 59!)
Life with a newborn is hard enough, as our struggling young parents (Jack Robertson & Chantelle Taggart) find, but the challenges of a long “diagnostic odyssey” can make this even harder. Early screening can be a huge positive step to find out if a rare condition is present, as early intervention and therapy is absolutely key.
We need YOUR help to raise our voices and make sure the UK government sees the massive benefit of adding more conditions to the UK newborn screening programme - "test early, to treat early - let's help families thrive!"
* The blood spot/heel prick test currently checks for 9 rare conditions in the UK and is ordinarily taken in the first five days of a new-born’s life, although as in the film babies can be screened up to the age of 12 months should parents reconsider (in this case the blood spot will test for all conditions except cystic fibrosis, which can only be screened for up to 8 weeks of age).
Learn more about the film at the Rare Revolution Magazine's website, here: https://rarerevolutionmagazine.com/a-...
This film was made possible thanks to the support of 16 small rare disease charities from The Newborn Screening Collaborative (a UK LSD Collaborative led initiative), including; AGSD - UK, ArchAngel MLD Trust, Batten Disease Family Association, Cure and Action for Tay-Sachs - CATS Foundation, Children's Heart Federation, Fragile X Society, UK, The Gauchers Association, Max Appeal, MLD Support UK, MPS Society UK, Muscular Dystrophy UK, Niemann-Pick UK, Pompe Support Network & Spinal Muscular Atrophy UK - please check out the fantastic work they do, and support them if you can!
Written & Directed by John Lee Taggart | Narrated by Robert Webb | Starring Jack Roberston, Chantelle Taggart, Cora Lily Taggart & Chris Houghton-Coldwell | Featuring Oliver Cape, Chloe Taggart & John Lee Taggart | Produced by Chris Thompson (Media Borne) | Director of Photography Dan Gregson | Cinematography by Daniel Patrick Vaughan | Edited by Jack McBride | Production Coordinator Rebecca Gallagher | Production Assistant Johno Ramsay | Poster Artwork by Lingxi Zhang #newbornscreening #raredisease #shortfilm #robertwebb