• Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal

Max Appeal! is a UK registered charity supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion

"...we were lucky. We had 115 days with Max, and saw him smile, and know who he was, and we learned about ourselves and the people around us..."

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Genetic Disorders UK - Jeans for Genes Day - October 2015

Forthcoming Events

Latest News

  • How Far Will You Go For 22q?
    MedalThe month of November is important on the 22q11 calendar as it's awareness month so here at Max Appeal we are inviting members, families and friends to take part in our virtual race, not only will you be helping to create awareness but also working towards your very own reward medal. So whether you have 22q11 or simply love someone who has the condition strap on your trainers or walking boots and join in, see how far you can go for 22q11 !!!

  • Equinox24 Run, Saturday 22 September 2018
    Image: teamphoto[2]17078800_thumb.pngA group of work mates from the Jaguar Landrover Whitley Engineering Centre are taking part in the Equinox24 run and raising funds for Max Appeal and awareness of 22q11 Deletion Syndrome.

  • Max Appeal Ezine July 2018
    header logoMax Appeal Ezine July 2018

  • Baby's heart condition detected through new born screening
    heart detectedA local family have praised Daisy Hill Hospital's paediatric team's innovative screening programme following the detection of a major heart condition in their new born baby girl.

  • Landmark moment for Stourbridge family's screening plea
    Image: raising_private_members_bill_247850544_thumb.jpgA STOURBRIDGE family's near 20-year quest to raise awareness of a little-known genetic disorder has enjoyed a huge breakthrough in Parliament. Wollaston couple Paul and Julie Wootton lost their son Max, aged just four months, to the rare Di George Syndrome condition in 1999. They set up the Max Appeal charity in his memory and have been campaigning for a screening programme to catch the condition also known as 22q11.2DS in the days after birth.

  • Cranham 2018
    Isobel and Trustee Mark Tripp raise the Max Appeal flag at the start of Cranham 2018Once again Max Appeal Families from across the country met at the Cranham Scout Centre for the start of our annual Youth Camp. With a mixture of indoor bunks and campsite we were once again able to cater for all and for those who needed something a little bit more extreme such as my fellow trustee Martin Kennedy there is always a handy Premier Inn situated 5 minutes away. "Isobel and Trustee Mark Tripp raise the Max Appeal flag at the start of Cranham 2018"

  • Shuttleworth 22q Family Meet up, Sunday 26 August 2018
    Shutteworth18Mark and Kelly Tripp would like to invite you all to a day at Shuttleworth Air Museum on Sunday 26th August, it is situated approximately 2 mins from the Biggleswade junction of the A1m in Bedfordshire.

  • Health care provision for adults with 22q11 DS Survey
    SurveyWe would like to hear from people with 22q11 Syndrome and their current experience of accessing health care in adult services.

  • 22q Family And Friends Meet Up Cannon Hall, Thursday 16 August 2018
    Cannon hill farm16 August at 10:3015:30 Cannon Hall Farm Bark House Lane, Cawthorne, S75 4AT Barnsley

  • Neurodevelopmental Outcome in 22q11.2 Deletion Syndrome and Management
    Recently published paper. (Mar 18)

  • Bournemouth Marathon Festival, Saturday 06 October 2018
    Bournemouth marathonExperience 'running as it should be' at the Bournemouth Marathon Festival enjoy coastal views, run the piers and set a new PB at your favourite distance.

  • Max Appeal Rocks!
    rockWelcome to Max Appeal Rocks! This page has been inspired by similar ventures, and creative friends. It's aim is fun and to raise awareness of Max Appeal, a small charity with an ethos 'to improve lives of 22q11 families.

  • Improving Lives - The future of work health and disability
    Dept WorkThe Department of Work and Pensions and the Department of Health have issued a White Paper on how they will make disabled people's lives better in the future. Easy to read versions available here;

  • Feeding Children With Heart Conditions
    CHF jan18The aim of this information sheet is to explain why many children with heart conditions have eating problems and what you as a parent can do to help overcome them. Click to download factsheet

  • Birmingham International Marathon, Sunday 14 October 2018
    Birm int marathon 18General entries for the 2018 Birmingham International Marathon are now open!

  • Great North Run 2018, Sunday 09 September 2018
    Image: photo_group__thumb.jpgMax Appeal are pleased to report that we have been successful in securing a Bronze + Charity package for the 2018 event to be held on Sunday 9th September.

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