• Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal
  • Max Appeal

Max Appeal! is a UK registered charity supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion

"...we were lucky. We had 115 days with Max, and saw him smile, and know who he was, and we learned about ourselves and the people around us..."

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Genetic Disorders UK - Jeans for Genes Day - October 2015

Forthcoming Events

Latest News

  • Neurodevelopmental Outcome in 22q11.2 Deletion Syndrome and Management
    Recently published paper. (Mar 18)

  • Cardiovascular Care Partnership Annual Conference, Wednesday 06 June 2018
    CCPManchester Central Convention Complex

  • Max Appeal AGM on 26th May 2018 at Cranham Scout Camp
    News bearAGMs are a requirement of the charity commission but we thought you'd enjoy it more if it was in a convivial atmosphere... like the camp weekend! Please see the attached for more information about the charity, the AGM and how to exercise your voting right (if you're a member). If you want to comment or have any further information get in touch via the usual routes.

  • Bournemouth Marathon Festival, Saturday 06 October 2018
    Bournemouth marathonExperience 'running as it should be' at the Bournemouth Marathon Festival – enjoy coastal views, run the piers and set a new PB at your favourite distance.

  • London Marathon 2018 Runners
    London Marathon 2018Please support our 2018 Virgin Money London Marathon runners. Share their pages and help boost their fundraising.. all monies going to Max Appeal. Jack Padley; 

  • Day on the Beach. Annual Max Appeal meet up, Sunday 15 July 2018
    Scarborough_BeachThe plans are to meet up on Scarborough Beach on the North Bay for our fifth annual meet up on Scarborough beach. It's the usual place infront of the Sands Apartments just at the end of Royal Albert Drive. I shall be getting there around 9.30am and shall put the windbreaks up with the Max Appeal flag on so will be easily visible from the front. It's open to all so if you're tempted and have the time please come along and share your story with us all.

  • Max Appeal Rocks!
    rockWelcome to Max Appeal Rocks! This page has been inspired by similar ventures, and creative friends. It's aim is fun and to raise awareness of Max Appeal, a small charity with an ethos 'to improve lives of 22q11 families.

  • Jack Padley is running the London Marathon for Max Appeal
    Jack PadleyPlease sponsor Jack who is running the London Marathon. Jack is a family friend of Ivy Mitchell and her family. Newspaper article attached. Link to donate at virginmoney below:

  • Rare Disease Day 2018: Joint North South Conference, Riddel Hall, 5 March
    RDDJulie attended the joint Irish rare disease event at Riddel Hall in Belfast on 5th March and was really pleased to see the great joint presentation from Gillian Cassidy of 22q11NI and Anne Lawlor of 22q Ireland which really brought 22q11DS to the front of the queue (no pun intended) at the meeting. Max Appeal got lots of mentions as the go to place. The dynamic and motivated Dr Tabib Dabir gave the run down on his innovative transition clinic that has been running in Belfast for two years now, ably supported by Gillian. This is certainly a model that could be replicated.

  • Association of Paediatric Cardiologists Working Group
    Julie attended this event in order to promote the consensus document and maintain relationships with other European links but there were also delegates from Canada and Australia. The theme of the event was based on psychological effects of having congenital heart disease and the effects of heart surgery, over a person's life. Julie was very pleased to catch up with many people from the UK, Netherlands, Finland, Italy and Germany. It was good to see our very own Claire Illingworth from Cambridge who has made valuable contributions to the Consensus Document, and Kerry Gaskin who is keen to ensure that the Congenital Cardiac nurses Association is always kept informed about 22q11DS.

  • Craig's Cycle Challenge Crewe to Weston Super Mare.
    CraigCraig is cycling from Crewe to Weston Super Mare to raise awareness and funds for 22q11 and Max Appeal. Follow his progress; https://www.justgiving.com/fundraising/craig-powell6 https://twitter.com/HuxleyMichelle

  • 22Q Family Meetup - Mad Hatters Tea Party, Sunday 29 April 2018
    Mad HatterFamily Meet up Opportunity Arranged by Tracey Hennighan

  • 22Q Family Meet Up At Magna Science Museum, Tuesday 03 April 2018

  • CHD Patient Survey
    CHD survey adultA new patient experience survey specifically for congenital heart services has been launched across England. This survey is hosted online and designed to enable all patients - both adults and children - and their parents/carers to report on their experiences of care at specialist surgical (Level 1) centre. There are separate surveys for outpatients and inpatients as well as surveys specifically aimed at parents/carers, children and adults/teenagers. The surveys have been developed through a number of interviews with patients and parents carers and is therefore designed to reflect the aspects of their care which were important to them. These survey enable patients' experience of care to be reported in a consistent way across all centres in england. The survey is being hosted by an independent organisation (MSB Consultancy) who will produce quarterly reports as well as a more detailed annual report for each centre. These reports will provide a valuable tool in enabling centres to better understand and respond to patients' and parent/carers' experience of care. We would encourage all patients and/or parents/carers to complete a survey following any outpatient appointments or inpatient admissions by going to: If you have any further questions about the survey please feel free to contact MSB Consultancy directly at info@msbconsultancy.com.'

  • The Deep Family Meetup
    The DeepAnother excellent Max Appeal family meet up at the spectacular Hull aquarium the Deep on Tuesday 13th February where a good time was had by all. Arranged by 22q Mum Lisa Franklin, bringing together families from as far away as Skipton, Leeds and Scarborough. The value of these meetings continues to deliver, with everyone enjoying the fishy goings on with sharks, turtles and even penguins to look at. It was brilliant seeing all fish etc. but as always for me the highlight is sitting together and having lunch. It gives everyone the opportunity to meet up with old and new friends, compare stories and generally chew the cud. A big thank you to Lisa for putting herself out and creating this opportunity for us all to get together and meet up'.

  • The Colour Run London, Sunday 08 July 2018
    Colour RunIs it a bird? Is it a plane? No, it's The Color Run Hero Tour 2018! The Color Run is back and it is soaring to London Wembley Park on 8th July 2018!

  • Improving Lives - The future of work health and disability
    Dept WorkThe Department of Work and Pensions and the Department of Health have issued a White Paper on how they will make disabled people's lives better in the future. Easy to read versions available here;

  • 22q at the Zoo Worldwide Awareness Day 2018, Sunday 20 May 2018
    Image: 22q-zoo-worldwide-awareness-day-home-300x181_thumb.pngSave the Date !!!!!

  • Feeding Children With Heart Conditions
    CHF jan18The aim of this information sheet is to explain why many children with heart conditions have eating problems and what you as a parent can do to help overcome them. Click to download factsheet

  • Scottish Disability Golf & Curling
    ScotlandTwo sports founded in Scotland, are now on offer to disabled people for the first time!!! The SDGP and the DCS have now merged to form Scottish Disability Golf & Curling Sticks & Stones

  • Birmingham International Marathon, Sunday 14 October 2018
    Birm int marathon 18General entries for the 2018 Birmingham International Marathon are now open!

  • Simplyhealth Great Birmingham 10K, Sunday 06 May 2018
    bhamEntries for the 2018 Simplyhealth Great Birmingham 10k are now open!

  • Max Appeal Ramblers 2018 - Snowdon, Saturday 21 July 2018
    stockAre you looking for a new challenge in 2018? Would you like to meet and spend time with other Max Appeal parents? Have you ever wanted to climb a mountain? Have you ever wanted to take on a challenge that didn't involve running? Can you work in a team? Would you like to fund raise for Max Appeal?

  • Max Appeal Youth Camp 2018, Friday 25 May 2018
    Image: 393760104_thumb.jpgMax Appeal Youth Weekend, at Cranham Scout Camp, Gloucestershire. Programme details to follow in 2018.

  • Great North Run 2018, Sunday 09 September 2018
    Image: photo_group__thumb.jpgMax Appeal are pleased to report that we have been successful in securing a Bronze + Charity package for the 2018 event to be held on Sunday 9th September.

  • 11th Biennial International 22q11.2 Conference, Wednesday 11 July 2018
    22qsoc11th Biennial International 22q11.2 Conference

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