Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Cardiff University - ECHO Study

Writes Samueal Chawner

Cardiff University ECHOCardiff University's ECHO study has been learning about the experiences children with 22q11.2 deletion and duplication syndromes for the past five years. In addition to child volunteers, we are now also looking for adults with the 22q11.2 deletion or duplication to take part.
This will improve our understanding of experiences across the lifespan. Please click on the link and visit our website for more information, or contact Ffion (adult study; Tel: 02920688242, email: evansf4@cardiff.ac.uk) or Aimee (child study; Tel: 02920688358, daviesar5@cardiff.ac.uk) if you are interested in taking part.




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