Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Max Appeal Hospital Passport

Hospital Passport

MedicAs part of their response to Covid-19 the Government give the following advice

'We advise all carers to create an emergency plan with the person they care for, to use in circumstances where help from other people to deliver care may be needed. Depending on the circumstances, this could be help from family or friends, or a care provider.

In order to create an emergency plan that fits the needs of the person you care for, you will need to set out:

the name and address and any other contact details of the person you look after

who you and the person you look after would like to be contacted in an emergency

details of any medication the person you look after is taking

details of any ongoing treatment they need

details of any medical appointments they need to keep'

For families who wish to adhere to the guidance can download and print our newly launched Hospital Passport, this passport will help inform medical personal about sources of information regarding your loved one.
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