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Supporting families affected by DiGeorge Syndrome, VCFS and 22q11.2 deletion

Heart Surgery PSP Workshop - Expression of Interest

Are you interested in joining a workshop to set priorities for heart surgery research?

Heart Research 19The Heart Surgery Priority Setting Partnership wants to find the Top 10 priorities for heart surgery research, working with heart surgery patients, their carers and families and the health professionals who treat them. Together, we want to discuss and decide the top ten priorities at a workshop, to be held in Leicester on the 11th July.

Who are we?
The Heart Surgery Priority Setting Partnership is a collaboration between the Department of Cardiovascular Sciences at the University of Leicester and the James Lind Alliance (JLA). It is funded by Heart Research UK. There is more information at:
https://le.ac.uk/cardiovascular-sciences/about/heart-surgery

What is the workshop for?
Last year we asked heart surgery patients, their carers and healthcare professionals to tell us the questions they wanted answering by research. Over 500 people took part, submitting over 1000 questions.

We then created a long-list of questions summarising what people asked in the survey and in a second survey we are asking people to choose the 10 questions in this long-list that are most important to them. The short list of the most highly-ranked questions will go to the workshop for further discussion between patients, carers and clinicians

The aim of the workshop is to decide the top 10 questions for research into heart surgery. We hope that this will help researchers focus on finding answers to questions which matter most to the people affected by heart surgery.

Who are we looking for?
We need people who are prepared to share their experiences and opinions, and listen to other people's, in a series of group discussions.

We want to invite 30 people who all have experience of, or knowledge about, heart surgery. This includes patients, their relatives and carers, and healthcare professionals.

Together, you will be helping us to make decisions about the top 10 research questions you think should be prioritised.

When?
The workshop will take place in Leicester on Thursday 11 July 2019 from 10.00am to 4:30pm. All travel expenses (and accommodation where necessary) will be reimbursed.

To register
If you are interested in taking part in the workshop, please complete the expression of interest form attached


Source: maxappeal.org.uk/news/content.asp?ni=594&pv=1

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