Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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David Duguid MP aks about new-born screening at PMQs

20th March 2019 - David Duguid MP does good work for people with 22q11 yet again

APPG logoDavid Duguid MP, chairman of the the all-party parliamentary group (APPG) for 22q11 syndromes, called for the condition to be added to the newborn blood spot test. The Prime Minister, Teresa May, replied that she would request a minister from the Department of Health and Social Care to respond.

Max Appeal would like to thank, Mr. Duguid, the APPG, and Mrs. May, for helping to add this important condition to the newborn screen test in the UK.



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Previous to this, on 5th June 2018, Mr Duguid MP raised a bill in Parliament to require the Health Secretary to conduct a review into 22q11.2 Deletion Syndrome. It will require the National Health Service (NHS) to publish a strategy to deal with the condition. Specifically, Mr Duguid called for neonatal blood spot screening to identify patients with a chromosome 22q11.2 deletion in the new-born period.
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