Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Eurodis Photo Award 2019

Submissions are now open

Eurodis 2018The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease, exploring its many aspects and to share your story with the rare disease community. Open to everybody around the world, last year saw nearly 400 people from more than 50 different countries submitting a photo, with each reflecting the drive of people living with a rare disease worldwide.
https://blackpearl.eurordis.org/eurordis-photo-award-2019/ Right Arrow