Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


Adam

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Cranham 2018

Isobel and Trustee Mark Tripp raise the Max Appeal flag at the start of Cranham 2018Once again Max Appeal Families from across the country met at the Cranham Scout Centre for the start of our annual Youth Camp. With a mixture of indoor bunks and campsite we were once again able to cater for all and for those who needed something a little bit more extreme such as my fellow trustee Martin Kennedy there is always a handy Premier Inn situated 5 minutes away.

"Isobel and Trustee Mark Tripp raise the Max Appeal flag at the start of Cranham 2018"
tent villageThis year saw an increase in families camping outdoors and this always proves to be a good icebreaker for debutants as we all muck in together as a group and help erect the tents in a timely fashion so that the entertainment can begin.

After a welcome dinner cooked by the wonderful Shelley Turpin who must have a special mention for running the kitchen all weekend and ensuring families were well fed, Thank you Shelley as the weekend can't run without the kind of support you provided the children sat down to watch a movie whilst the adults gathered together for catch up chat.

"Small selection of our tented village"
Clare axeThe Saturday began with a hearty cooked breakfast before we dispersed in groups around the site to take place in the activities, this year the kids took part in grass sledging, archery, rifle shooting, wall climbing and also a new activity of Axe throwing which turned out to be so successful more sessions had to be laid in so that the parents could take part as well. It was noted that a 22q11 warrior's mum should never be upset as they all proved to be exceptional with an axe in their hands

"Clare showing her skills with the Axes"

Daniel ArcheryYoung Daniel being taught Archery
Joshua AxeJoshua showing his Axe throwing skills
arts and craftsSaturday afternoon saw a change in activities with a special baking and craft session taking place as we were hosting our very own 'Have a Brew for 22q' event on the Sunday, the various cakes, cookies and muffins made were amazing as were the special decorative mugs and T-shirts that were also produced.

Saturday evening saw us hold a BBQ around the camp fire, this year we also held our AGM before Simon Lonsdale led us all in a traditional camp fire sing song which proved as popular as ever as did the toasted marsh mellows that followed.

Sunday morning once again started with a hearty cooked breakfast before we started the day's activities with dam building in the river and generally soaking every adult within splashing distance.

The afternoon saw us host our very own 'Have a brew for 22q' event where vast amounts of cakes where eaten and large quantities of tea consumed. We showed how easy it can be to host an event and how all the family can participate, if any member would like more advice on hosting their own event please email us at info@maxappeal.org.uk

After all that cake young Ryan hosted a junior disco in the hall whilst the now bloated adults once again came together for a chat and exchanged stories both good and bad whilst we reflected on the difference in our children in just one weekend.

The evening was completed with Simon and Caroline Lonsdale holding a family quiz where I was horrified to know the answer to the Justin Beiber based question

Whilst being an extremely busy weekend it was once again a huge success and the proof of this is seeing the tears on the Monday when families had to say goodbye to each other, hearing young Thomas describe the week end 'as the best thing ever' makes all the hard work extra pleasurable and all at Max Appeal look forward to Cranham 2019. We are also looking into taking the camp on tour in 2019 and we hope to host an event in Scotland next year along with some one day activities around the country so please keep an eye out in January for dates for your diary.

Finally I must thank Simon and Caroline Lonsdale, Claire Hennessey, Guy and Moylesy for once again putting together a fabulous weekend, a special thank you must also go to all the families who attended for working together as one big family to ensure all the jobs got done and that we left the site as we found it.

AGM 2018

Due to the numbers attending camp we were able to form a quorate, all motions were passed with Julie and Paul Wootton being re-elected as Chair and treasurer respectively along with Rachel Boyle who retains the her role as secretary. Congratulations to all three.

Two new trustees were also elected and Max Appeal warmly welcomes both Tracey Hennighan and Maria Rogdaki onto the board of trustees, Maria brings professional expertise from the world of mental health and Tracey brings with her expertise as a child care practitioner and also a parent of a teenage 22qer.

Members were also updated with regards to imminent happenings regarding the 22Q11 APPG group along with discussions regarding Max Appeal's finances and plans for the year.

Many thanks to all members who participated in the AGM, these meetings are an important opportunity for the board to listen to our members priorities.

Mark Tripp
Trustee