Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Association of Paediatric Cardiologists Working Group

'Neurodevelopment and Psychosocial Care from From Fetus to Adult" 7-9th March 2018

Julie attended this event in order to promote the consensus document and maintain relationships with other European links but there were also delegates from Canada and Australia.

The theme of the event was based on psychological effects of having congenital heart disease and the effects of heart surgery, over a person's life. Julie was very pleased to catch up with many people from the UK, Netherlands, Finland, Italy and Germany. It was good to see our very own Claire Illingworth from Cambridge who has made valuable contributions to the Consensus Document, and Kerry Gaskin who is keen to ensure that the Congenital Cardiac nurses Association is always kept informed about 22q11DS.

Following on from that meeting is the European Congenital Heart Organisation meeting. Max Appeal is grateful to Children's Heart Federation for continuing to man the Max Appeal display for the event too.