Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Re-register of APPG

Re-register of APPG

Image: group_photo_appg_medium.jpgOn Wednesday 13th September 2017, Julie & Paul Wootton, Claire Hennessey, Mark Tripp and Julie Jones went to the House of Commons to re-register our APPG for 22q11. We had until 15th September to re-register. Our Chairman MP Jack Lopresti stood down and new MP David Duguid has taken the Chairman position. New members Heidi Allen MP will act as Secretary, Melanie Onn MP - Vice Chair, and Jack Lopresti as Vice Chair. All documents were signed and our re-registration was sent off and accepted. Attached are the draft minutes of the meeting. More information to follow....