Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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CoIN Study Kings College London

Investigating the impact of the Covid 19 pandemic on mental health and wellbeing in families of children with rare genetic and neurodevelopmental disorders.

CoINThe CoIN Study will track changes in wellbeing during and after the pandemic in order to understand the specific challenges facing families of children with rare disorders and how these relate to mental health and wellbeing. Your responses will be rapidly fed back to charities and support organisations, and used to identify and provide better ways of supporting you both now and in the future.
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