News Archive 2018
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Sunday 2nd December 2018Members Meet up Normanby Hall Country Park, Sunday 16 December 2018
Meet up for 22q11 family and friends at Normanby Hall Country Park. -
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Friday 30th November 2018Stevenage Family Meet up Golf, Sunday 09 December 2018
Meet at 3.0 -
Wednesday 28th November 2018Meet up Sealife Centre Birmingham, Saturday 09 February 2019
Max Appeal members outing to Sealife Centre Birmingham. -
Thursday 22nd November 2018Great North Run 2019, Sunday 08 September 2019
Max Appeal are pleased to report that we have been successful in securing a Bronze + Charity package for the 2019 event to be held on... -
Wednesday 21st November 201822q11 Awareness Day, Thursday 22 November 2018
Max Appeal highlights the need for early diagnosis and releases new film to mark awareness day. -
Tuesday 20th November 2018Genetics Alliance CONCORD (CoOrdiNated Care Of Rare Disease)
Genetics Alliance are currently recruiting patients, carers and health care professionals to take part in focus groups to develop our... -
Tuesday 20th November 2018Eurodis Photo Award 2019
The EURORDIS Photo Award is an opportunity to visually express what it means to live with a rare disease, exploring its many aspects and to... -
Friday 9th November 2018Gemma Keir - Chat Magazine Article
Mum to Logan, Gemma Keir, raising 22q awareness in Chat Magazine. -
Thursday 1st November 201822q11 Awareness month, Thursday 01 November 2018
November is the special month to raise awareness of 22q11 Deletion Syndrome. -
Friday 19th October 2018Normanby Hall Country Park 22q Family Dayout, Sunday 28 October 2018
22q Families are invited to a Family day at Normanby Hall on the 28th October. -
Wednesday 19th September 201822q Foundation Australia & New Zealand
Link below are presentations and resources from conferences held in Sydney (26th August 2018) and Auckland (1st September 2018). -
Monday 17th September 2018Shepreth 22q Family Meetup
We had the most wonderful day at Shepreth Wildlife Park. -
Monday 17th September 2018Cannon Hall Farm 22q Family Meetup
Thank you Lisa for arranging this lovely 22q family meetup. -
Monday 17th September 2018Max Appeal Ramblers 2018
once again whilst most had enjoyed a sensible quiet evening yours truly had slightly over indulged. -
Friday 14th September 2018Max Appeal Express Pin Badges
We are pleased to offer these commemorative ‘Max Appeal Express’ Pin badges for sale. -
Monday 10th September 201822q Family Day at Scarborough Beach 2018
Just got back from the annual Beach Day meet up on Scarborough Beach. -
Friday 7th September 2018Amazon Smile
How does AmazonSmile work? When first visiting smile.a -
Monday 20th August 2018Marwell Zoo 22q Family Meetup, Sunday 16 September 2018
22q Family Meetup at Marwell zoo on the 16th September. -
Thursday 16th August 2018How Far Will You Go For 22q?
The month of November is important on the 22q11 calendar as it's awareness month so here at Max Appeal we are inviting members, families... -
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Thursday 9th August 2018Equinox24 Run, Saturday 22 September 2018
A group of work mates from the Jaguar Landrover Whitley Engineering Centre are taking part in the Equinox24 run and raising funds for Max... -
Friday 29th June 2018Show of Hands family concert Abbotsbury 2018., Saturday 07 July 2018
Come and see show of hands and friends. -
Friday 22nd June 2018
Max Appeal Ezine July 2018
Max Appeal Ezine July 2018 -
Friday 22nd June 2018Baby’s heart condition detected through new born screening
A local family have praised Daisy Hill Hospital’s paediatric team’s innovative screening programme following the detection of a major heart... -
Monday 18th June 2018Landmark moment for Stourbridge familys screening plea
A STOURBRIDGE family’s near 20-year quest to raise awareness of a little-known genetic disorder has enjoyed a huge breakthrough in... -
Friday 15th June 2018
Ten Minute Motion Bill in Westminster for 22q11 Syndrome, on Tuesday 5th June, 2018.
We were all thrilled at Max Appeal when we heard David Duguid MP, Chair of the 22q11 All Party Parliamentary Group (APPG) had secured time... -
Friday 15th June 201822q At the Zoo 2018
Dear Max Appeal members, we had a lovely day at Whipsnade Zoo this year, raising awareness of 22q with our joint enthusiasm, with some of... -
Friday 15th June 2018
Max Appeal Annual General Meeting held at Cranham Camp 28th May 2018
Due to the numbers attending camp we were able to form a quorate, all motions were passed with Julie and Paul Wootton being re-elected as Chair and... -
Friday 15th June 2018Cranham 2018
Once again Max Appeal Families from across the country met at the Cranham Scout Centre for the start of our annual Youth Camp. -
Friday 15th June 2018Shepreth Wildlife Park 22q Family Meetup, Sunday 05 August 2018
Max Appeal families are cordially invited to join us on Sunday 5th August at Shepreth Wildlife Park in Cambridge to enjoy a family day out... -
Friday 15th June 2018The Max Appeal Express
It is with great sadness that we inform members that our beloved train ‘The Max Appeal Express’ was withdrawn from service in February of... -
Thursday 14th June 2018Shuttleworth 22q Family Meet up, Sunday 26 August 2018
Mark and Kelly Tripp would like to invite you all to a day at Shuttleworth Air Museum on Sunday 26th August, it is situated approximately 2... -
Tuesday 5th June 2018Raising Private Members Bill, House of Commons, Tuesday 05 June 2018
Max Appeal supports David Duguid MP (and Chair of the 22q11 All Party Parliamentary Group (APPG)) Ten Minute Rule Bill where he called for... -
Monday 4th June 2018Health care provision for adults with 22q11 DS Survey
We would like to hear from people with 22q11 Syndrome and their current experience of accessing health care in adult services. -
Monday 4th June 201822q Family And Friends Meet Up Cannon Hall, Thursday 16 August 2018
16 August at 10:30–15:30 -
Thursday 17th May 2018Cardiovascular Care Partnership Annual Conference, Wednesday 06 June 2018
Manchester Central Convention Complex -
Saturday 5th May 2018Max Appeal AGM on 26th May 2018 at Cranham Scout Camp
AGMs are a requirement of the charity commission but we thought you'd enjoy it more if it was in a convivial atmosphere.. -
Thursday 26th April 2018Bournemouth Marathon Festival, Saturday 06 October 2018
Experience ‘running as it should be’ at the Bournemouth Marathon Festival – enjoy coastal views, run the piers and set a new PB at your... -
Thursday 19th April 2018London Marathon 2018 Runners
Please support our 2018 Virgin Money London Marathon runners. -
Monday 16th April 2018Day on the Beach. Annual Max Appeal meet up, Sunday 15 July 2018
The plans are to meet up on Scarborough Beach on the North Bay for our fifth annual meet up on Scarborough beach. -
Tuesday 10th April 2018Max Appeal Rocks!
Welcome to Max Appeal Rocks! This page has been inspired by similar ventures, and creative friends. -
Monday 9th April 2018Jack Padley is running the London Marathon for Max Appeal
Please sponsor Jack who is running the London Marathon. -
Wednesday 28th March 2018Rare Disease Day 2018: Joint North South Conference, Riddel Hall, 5 March
Julie attended the joint Irish rare disease event at Riddel Hall in Belfast on 5th March and was really pleased to see the great joint... -
Wednesday 28th March 2018
Association of Paediatric Cardiologists Working Group
Julie attended this event in order to promote the consensus document and maintain relationships with other European links but there were also... -
Friday 23rd March 2018Craigs Cycle Challenge Crewe to Weston Super Mare.
Craig is cycling from Crewe to Weston Super Mare to raise awareness and funds for 22q11 and Max Appeal. -
Monday 12th March 201822Q Family Meetup - Mad Hatters Tea Party, Sunday 29 April 2018
Family Meet up Opportunity -
Monday 12th March 201822Q Family Meet Up At Magna Science Museum, Tuesday 03 April 2018
10:00–15:00 -
Monday 5th March 2018CHD Patient Survey
A new patient experience survey specifically for congenital heart services has been launched across England. -
Monday 19th February 2018The Deep Family Meetup
Another excellent Max Appeal family meet up at the spectacular Hull aquarium the Deep on Tuesday 13th February where a good time was had by... -
Monday 5th February 2018The Colour Run London, Sunday 08 July 2018
Is it a bird? Is it a plane? -
Thursday 18th January 2018Improving Lives - The future of work health and disability
The Department of Work and Pensions and the Department of Health have issued a White Paper on how they will make disabled people's lives... -
Wednesday 17th January 201822q at the Zoo Worldwide Awareness Day 2018, Sunday 20 May 2018
Save the Date !!!!! -
Wednesday 10th January 2018Feeding Children With Heart Conditions
The aim of this information sheet is to explain why many children with heart conditions have eating problems and what you as a parent can... -
Wednesday 10th January 2018Scottish Disability Golf & Curling
Two sports founded in Scotland, are now on offer to disabled people for the first time!!! -
Wednesday 10th January 2018Birmingham International Marathon, Sunday 14 October 2018
General entries for the 2018 Birmingham International Marathon are now open! -
Wednesday 10th January 2018Simplyhealth Great Birmingham 10K, Sunday 06 May 2018
Entries for the 2018 Simplyhealth Great Birmingham 10k are now open! -
Wednesday 10th January 2018Max Appeal Ramblers 2018 - Snowdon, Saturday 21 July 2018
Are you looking for a new challenge in 2018? -
Wednesday 10th January 2018Annual Tripps Have a Brew for 22q
November the 25th saw the Tripp’s annual ‘Have a brew for 22q’ open day.
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Source: maxappeal.org.uk/news/Default.asp
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