Harrison

He spent the next four and a half months struggling to feed, not gaining weight at a satisfactory rate, and catching every illness doing the rounds.
Finally, a health visitor was concerned about his health and sent him to be checked at his local hospital. After a brief assessment he was sent immediately to the Royal Brompton.

In early September 1998, his breathing became very laboured because he'd contracted RSV (Bronchiolitis) which for Harrison was life threatening.
After another month in hospital he had recovered enough to be discharged, but the infection had damaged his lungs and Harrison was put onto continuous oxygen via nasal cannulae. He stayed on this permanently until November 2000.

He had complications after the surgery, and after three more minor procedures he left hospital three weeks later. The second surgery went ahead in August 2000. Harrison recovered very quickly, and was discharged eight days after surgery. He was sent home still requiring oxygen, but it was hoped that his need would diminish rapidly soon after. This was not to be the case. Harrison became more and more irritable, and soon needed more oxygen than ever before. He was extremely breathless, and could not walk two metres without his oxygen levels in his blood dropping to low 40%. This was while he was being given THREE litres of oxygen per minute. This amount gave Harrison severe headaches, and the extreme breathlessness caused vomiting and weight loss. He was sent back to the Brompton only two weeks after going home. The Brompton staff decided Harrison should remain with them until he could undergo a total correction for his heart condition.

Harrison had a major bleed towards the end of the surgery; the surgical team experienced great difficulty in tracing, and eventually stemming the bleed. The surgeons had closed off more surplus arteries they found, and had fitted a homografted pulmonary artery from the lower end of his right ventricle, over the heart, and reconnected to the junction of the left and right pulmonary arteries. The large VSD Harrison had was patched. His right pulmonary artery was widened. The homograft would have depressed Harrison's right-sided aortic arch onto his trachea and oesophagus, and so the surgeons stitched the homograft onto the chest wall. They had not performed this step before in similar operations. One large surplus artery remained which the surgeons physically could not reach safely.

After four months of intensive occupational and physiotherapy Harrison was able to walk unaided again. Things were going well, but then he started catching recurrent infections again, so is now taking regular antibiotics.

To manage his condition, Harrison takes several medicines each day for his heart, lungs and immune system. He has injections for pneumonia and flu and therapy for his speech and language. He easily becomes breathless on minimal exercise.

Throughout his life, Harrison has always been a very happy, easy-going little boy who doesn't complain. He is very cheeky and everyone falls for his charms. He loves using his computer which is invaluable for his education, and plays his Formula 1 '05 game on his PS2 like a pro. He can swim, but his poor exercise tolerance means he can only manage at best around three metres. He currently has tennis lessons, but will unfortunately have to give them up soon as he doesn't have the stamina to play the mini matches. To compensate, he is being introduced to golf as he can participate at his own pace (and it might mean he could drive the carts!). He loves to watch any sport and is very excited about London 2012. He is a real character, an inspiration and a true survivor.