Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Ivy

Ivy - Overcoming Adversity Award

Image: ivy39611452_medium.jpgAs printed in the Sleaford Standard;
" Sleaford four year old Ivy Mitchell is a candidate for our Overcoming Adversity Award.
Ivy underwent open heart surgery just over a year ago but suffered kidney failure, finally recovering enough to come off of a ventilator in May, explains proud mum Dorne.
She became well enough to start at William Alvey School in September while contending with the genetic condition Di George Syndrome (22q11 deletion) which can cause heart defects, learning difficulties a cleft palate and other complications.
She can only attend school part time due to infection risk and requires a tracheostomy to breathe, but Ivy has learnt to cope with the normal school day and makes lots of friends.
Just before Christmas Ivy helped organise a non uniform day for the Max Appeal which supports families with children with Di George's syndrome and took part in the school's special assembly about keeping Glenfield hospital open. Dorne said ' She still defies everyone by being with us and going to a mainstream school. We could not be more proud of her'."
Image: fullsizerender39987688_medium.jpgIvy won the 0-2 year old bravery award and secured a donation of 2,500 for Maxappeal in the process from St James place foundation. She had an amazing night, and touched the heart of many.

Since then Ivy has gone on to have more open heart surgery and thankfully has bounced back with even more fight on her. She is to start main stream school in September. A day that a times we dare not think about.

Ivy became big sister again in March to baby Fleur.

Recently Ivy decided she could say mummy, it's been along time coming she has said dada and lily for what seems like ages! There wasn't a dry eye in the house. We prey she continues to go from strength to strength.

Love you with all our hearts Ivy.
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