Max Appeal Consensus Document for 22q11.2 deletion SyndromeThis document has been over 4 years in the making and has been written by some of the UK's top experts.
Thanks go to the panel:
Dr Jeremy Allgrove (Editor)
Dr Kate Baker
Dr Helen Baxendale
Dr Frances Bu'Lock
Dieuwertje de Waardt
Dr Helen Firth
Dr Andy Gennery
Dr Alex Habel
Dr Richard Herriot (chair of committee)
Prof Anthony Holland
Dr Claire Illingworth
Dr Dinakantha Kumararatne (Max Appeal trustee)
Mr Nigel Mercer
Dr Merel Pannebakker
Mr Andrew Parry
Dr Beverly Tsai-Goodman
We are also very grateful to Hilary Joyce, Max Appeal trustee, for her work in the preparation of the parent friendly version.
Special mention has to be made of Jeremy Allgrove's tireless efforts as editor, an unenviable task!
Alex Habel has been negotiating with journals and has produced the executive summary for publication.
Dr Kumararatne must take credit for joining the Max Appeal board of trustees many years ago and driving this project forward and providing a very small charity with a big opportunity to make a substantial difference.
Please 'contact Us' if you would like a hard copy.
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Order a copy of the Professional or Parent/Carer Consensus DocumentIf you would like a paper version of the Parent and Carers Consensus document or the Professional Consensus Document posting to you, please complete the attached form.