Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Knowledge

Hello!

This is the repository for Max Appeal's accumulated knowledge of 22qDS gained through reading research documents, UK and international publications, collaboration with our extensive medical and professional network and the wealth of experience that has been passed on to us by our members. As such it is a constantly dynamic area of our web site New materials, research, information and advice are being developed all the time and we endeavour to keep pace with these. To use 'geek' terminology; the world of 22q is a "super high speed broadband" kind of environment and Max Appeal works hard to be your "super connected 22q city"!

What is the Information Standard?

Info stan propeerThe Information Standard is a certification scheme for health and social care information. It has been established by the Department of Health to help patients and the public make informed choices about their lifestyle, their condition and their options for treatment and care. About 50,000 organisations produce health and social care information for the public in England and some people can feel overwhelmed by the volume of material and be unsure what to trust. The Information Standard has been introduced to fulfil the need for a 'quality filter' to help people decide which information is trustworthy. It provides a recognised 'quality mark' which indicates that an organisation is a reliable source of health and social care information.

Read more about the scheme on The Information Standard website.