Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


Adam

Make a Donation

Find Max Appeal on Facebook

Join Max Appeal

Virgin Money London Marathon
13th April 2014

Good Luck to all our runners who are taking part in this year's event.

Our heros are;
Joe Farmer...Joe ran last year as well!, Matt Allen,
Andrew McGettigan, Austin Barnes, Blake Young, Steve Barlow and Rachel Wood.. ( father and daughter), Michael Sherwood and Pauline Pyke.
Find out more about how things are 'shaping up' for their challenge on the big day.

Joe and Matt have organised a quiz and have a day bag packing at Tesco's Cradley Heath...so don't be surprised if you live locally to get an invite!

Austin is a fellow colleague of Mark Tripp, Max Appeal member and their employer First Group have donated a wonderful sum of 1,000.

Please support all of our runners; Andrew, Blake, Steve, Rachel and Pauline are working hard on training plans and all need your help to raise funds for Max Appeal.

Pauline's inspiration for signing up for the Virgin London Marathon

Pauline PykePauline tells us her story;

I was working as a Learning Support Assistant at the local junior school when I first met Niamh.

She was about to start in mainstream school in year 3, after attending a specialist speech and language school previously.

I was to be assigned to her, as her support. Before meeting her, I was given some information about her that didn't paint the most pleasant of pictures! I was on guard and prepared for the worst.

Niamh came into school with very low levels. Her learning had been disrupted from an early age due to a condition called 22q11.2, which did not get diagnosed until she was five years old. She had undergone many operations, to repair a hole in her sub mucus cleft palette, that severely affected her speech. The condition also affected her in many other ways, so as a 7 year old girl, having to deal with many challenges in her life, I was prepared for a challenge myself.

Niamh was a pure joy to work with!

I was working as a Learning Support Assistant at the local junior school when I first met Niamh.

She was about to start in mainstream school in year 3, after attending a specialist speech and language school previously.

How wrong could I be. Niamh was a pure joy to work with. She faced walls and barriers on a daily basis but always with a smile on her face. Her wicked sense of humour and her drive and ambition to learn was second to none, that it made my job an absolute joy and a pleasure to go to work each day. I have to say, I became very attached to this little girl.

I remained her support until she finished in year 6 and saw her make accelerated progress in her learning throughout the 4 years.

Niamh is a credit to herself and her family and I am so proud to be able to take part in this years London marathon and raise funds for the charity "Max Appeal," that have been available to Niamh and her family (and others with this condition,) to turn to when needed.

Please help me by donating to this charity that supports people like Niamh.



Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate saving time and cutting costs for the charity.