Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Raising Private Members Bill, House of Commons
5th June 2018

First Reading 5th June, 2018.

Scottish Conservative MP and Chair of the All Party Parliamentary Group (APPG) on 22q11 David Duguid proposed a Bill to Parliament, seeking the introduction of routine screening for 22q11 so it can be diagnosed and treated earlier.

News Release

David Duguid MP calls for routine screening of rare genetic disease.

Please view full news release below.


Louise releases her family's story to the Press & Journal, Scotland

Louise's local MP, David Duguid raised his Private Members Bill on 22q11 Syndrome in Westminster.


The story is released in the regional press.
https://www.pressandjournal.co.uk/fp/news/north-east/1342025/youngster-joins-up-with-local-mp-to-raise-awareness-of-rare-disease/ Right Arrow