Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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Rare Disease Day Events
1st March 2016

Our campaign Rare Disease UK will mark international Rare Disease Day Monday 29 February by hosting a number of Parliamentary Receptions across the UK. Details below:
Scotland Reception hosted by Malcolm Chisholm MSP
When: 6pm to 8pm, Tuesday 1 March 2016
Where: The Garden Lobby of the Scottish Parliament Edinburgh, Edinburgh EH99 1SP
Sarah Goodyear to attend