Ivy'v Story What care and support is available for those with deletion 22q11 syndrome?


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22q11 Syndrome APPG Launched 10th March, 2015
10th March 2015

22q11 Syndrome APPG Launched at House of Commons, London

HofC logoMP's,families and medics from across the UK came together for an event at the House of Commons to raise awareness of those affected by 22q11 Syndrome.
Launch APPGThe event, hosted by Jack Lopresti MP,marked the setting up of the first All Party Parliamentary Group [APPG] for Max Appeal. Speakers at the event included Jack Lopresti MP, Jane Ellison MP Parliamentary Under-Secretary for Health and Dr Alex Habel who established the longest running 22q11 clinic in Britain at Great Ormond Street Hospital.