Max Appeal October 2015 
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Max Appeal E-Zine
October 2015
Events, News & Information
Dear Max Appeal members, welcome to your October 2015 newsletter.  We hope you enjoy seeing what events and fundraisers are coming up
We also would like to keep you updated with important news and to remind you what Max Appeal can offer you.
Wear your jeans on Friday 18th September in support of Jeans for Genes Day
If you do have any comments or queries, please email us at
What would you like to see in next months ezine?  If you have any ideas please do email us.
  • Forthcoming events & fundraisers in October
  • Thank you
  • Research & News
  • How to order Consensus documents
  • Change of contact details
Forthcoming events and Fundraising ideas
Visit to the Palace of Westminster
26th October 2015
The Rt Hon Alistair Burt MP, Minister of State for Community and Social Care at the Department of Health has kindly arranged a Tour of the Palace of Westminster.
The event will be from 10.30am - 2.30pm. 
We only have 25 places for Max Appeal members. Please email if you would like to put your name forward for a place. As places are limited, we will hold a ballot if the event is over subscribed.
Jeans for Genes 18th September 2015
Wear your jeans on Friday 18th September in support of Jeans for Genes Day. 

Max Appeal is one of the charities being supported through this year's appeal. Genetic Disorders UK will be funding a parent conference for Max Appeal parents / carers on Saturday 5th December at Cardiff University. Look out of more details about the day in our next newsletter and on our website.

Mention Max Appeal if your local school, work place or community centre is supporting the day. 

Look out for the Max Appeal article in the Independent supplement for Genetic Disorders Campaign 2015 on Friday 18th September. ' 
Member meet ups
& Fundraising.

Anybody can setup their own Max Appeal meetup.  Please do me email us at and we can help get your meetup details out to all of the members.

Or if you're looking to do some fundraising and would like help to promote your event, please do contact us.  We can add the details onto Facebook and our webpage and newsletters.
Have a Brew for 22Q!
With an estimated 35,000 people, who are living with 22Q in the UK, you can do something to help and have a great time with friends and family.
Put the kettle on....Get together, invite all your friends and family, set the date, put the kettle on and get the cakes in the oven. It's as simple as that. 
Free Tea Party PackHave a Brew pack includes 6 balloons, 6 cake toppers, A3 poster, bunting and money box. 
To register your event and request your free pack please email: Please send your name contact / address. 
For further information please go to
A big Max Appeal Thank you to....
Have a Brew & Fund raising day organised by Lynette Dakin
Lynette and family held a Have a Brew for 22q and raised an impressive £250. 
They had some fantastic raffle prizes. 
Thank you so much from All at Max Appeal for your fundraising
Special Thameslink train raises £9,000 for health charities
A charity train chartered by Thameslink for rail enthusiasts has raised £9,000 for three very worthwhile causes. 

The Royal Marsden Hospital, Royal Brompton & Harefield Hospital and childhood illness support organisation Max Appeal were each given £3,000 at a ceremony organised by Thameslink timetable planner Matthew Dodd, 28, who dreamed up the trip after members of his family were treated at the hospitals. 
For the full story please follow this link
188 Mile Bike ride for Max Appeal
A tremendous thank you to Phillip Hume and Team for their epic bike ride: 
I am very proud to announce that a team of eight cyclists supported by five crew completed an epic bike ride on Saturday, leaving Knutsford at 6am & arriving 188 miles later in Bath at 7pm. 
For the full story please click the link below:
Great North Run 2015
Great North Run.. Team Max Appeal were mobilised and ready to face the challenge on the 13th September. We had Archie Wootton taking part in the Junior Run (5km) 

We had almost 30 runners enter and what a team! They've raised £14.5k already. Can't 'big-up' their efforts enough. 

For full details please click link

Thank you to all of our volunteers and fundraisers
Please join us in saying a massive ‘thank you’ to our wonderful volunteers and fundraisers who help us in delivering support everyday across the UK.
Research & News
Leah and Sarahs 22q11DS Research at Cardiff University
In August Sarah and Leah Ryan went to Cardiff University to take part in research for 22q11 Deletion Syndrome 
For the full story and how you can help by taking part, please follow the link below:

Calling parents and carers of children and young people aged 11- 25 years
We would ask you to participate in the on-line forum to inform us about your experiences as a parent/carer of a person with 22q11DS about access to services and mental health issues. 
Please click on the link below to find out more information.
Or Email
Mary's trip to Japan (& Maxi Bear went too) 24th July 2015
On the 24th July 2015 Mary and Maxi bear left Bristol to go on a journey of a lifetime. They were heading to Japan...
Read all about their adventure here..

Max Appeal Family fun day
23rd August 2015
Scarborough Beach

Brilliant day on Scarborough Beach. Great turn out with old and new friends. Enjoyed every minute with the Max Appeal family
Max Appeal Christmas Card Competition
Well you probably don't want to be reminded, but it's only 14 weeks to Christmas!

We would like to offer some new Christmas Card designs for the coming festive season.
Can you help.... if you would like to enter a festive design which could be chosen as part of the Max Appeal 2016 Christmas Card series please produce your design on an A4 sheet of paper and put your name, competition group and contact details on the back of the picture. Please send to Freepost Max Appeal. Closing date for entries is 30th September, 2015.
The competition groups are;
Group A - Up to 11 years
Group B -  12 -17 years
Group C  - 18 years and over
Volunteers Wanted
The Psychiatric Imaging Group at Imperial College London is looking for male and female volunteers aged between 18-65 to participate in a research project. We are looking for volunteers who are carriers of 22q11 deletion.
Please click here for further details
Just Giving...

To Donate to Max Appeal is so easy.. Just click on the link below please.
Information Ordering
If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
Copies can also be downloaded.
Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at
Thank you
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