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Max Appeal September 2015 
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Max Appeal E-Zine
September 2015
Events, News & Information
Dear Max Appeal members, welcome to your September 2015 newsletter.  We hope you enjoy seeing what events and fundraisers are coming up
We also would like to keep you updated with important news and to remind you what Max Appeal can offer you.
If you do have any comments or queries, please email us at info@maxappeal.org.uk.
We are holding a Max Appeal Christmas Card design competition, please see details below.
What would you like to see in next months ezine?  If you have any ideas please do email us.
  • Forthcoming events & fundraisers in September
  • Thank you
  • Research & News
  • How to order Consensus documents
  • Change of contact details
Forthcoming events and Fundraising ideas
Great North Run
13th September 2015

We had 25 guaranteed charity places which are all now committed and the closing date for entries has now passed.
Max Appeal will have a stand in the Bronze Charity Marquee, exact location to be confirmed, we will post a link to the map when it arrives, refreshments will be provided for runners and their supporters and the opportunity to meet Julie and Maxi Bear, if any families would like to come along on the day, more than welcome.
 
Are you planning a challenge for 2016? Contact paul@maxappeal.org.uk for running place information.
Visit to the Palace of Westminster
26th October 2015
 
The Rt Hon Alistair Burt MP, Minister of State for Community and Social Care at the Department of Health has kindly arranged a Tour of the Palace of Westminster.
The event will be from 10.30am - 2.30pm. 
We only have 25 places for Max Appeal members. Please email  info@maxappeal.org.uk if you would like to put your name forward for a place. As places are limited, we will hold a ballot if the event is over subscribed.
Vote for Max Appeal - Just Giving Charity of the Year.
 
Vote for Max Appeal - Just Giving Charity of the Year 2015Why not help Max Appeal by nominating them for charity of the year with Just giving. 
The JustGiving Awards return to the UK this September and the hunt has begun to find our next Charity of the Year AND the Most Popular Charity Campaign – a new category for 2015. 
Please feel free to share and ask your friends and family to vote too.
For further information please go to:
https://www.maxappeal.org.uk/news/content.asp?ni=251
http://www.justgiving.com/en/charity-of-the-year
September
Member meet ups
& Fundraising.

Anybody can setup their own Max Appeal meetup.  Please do me email us at info@maxappeal.org.uk and we can help get your meetup details out to all of the members.

Or if you're looking to do some fundraising and would like help to promote your event, please do contact us.  We can add the details onto Facebook and our webpage and newsletters.
Have a Brew for 22Q!
 
With an estimated 35,000 people, who are living with 22Q in the UK, you can do something to help and have a great time with friends and family.
Put the kettle on....Get together, invite all your friends and family, set the date, put the kettle on and get the cakes in the oven. It's as simple as that. 
Free Tea Party PackHave a Brew pack includes 6 balloons, 6 cake toppers, A3 poster, bunting and money box. 
To register your event and request your free pack please email:  steph@maxappeal.org.uk Please send your name contact / address. 
For further information please go to http://www.maxappeal.org.uk/news/content.asp?ni=227
A big Max Appeal Thank you to....
tRailBlazer Walk 13th March 2015
A huge thank you to Simon Evans and the tRailBlazer team who walked from stations of Eggesford to Umberleigh in North Devon. It's approximately 12 miles in length and will follow as closely as possible the railway line by using roads, footpaths and bridleways. 
They raised OVER £3,000 for Max Appeal. MASSIVE !!!!!! 

The figure keeps going up and now likely to be over £4,000. 
Claire Hennessey was pleased to meet some of the tRAILblazers team at Salisbury train station in June and accept a cheque on behalf of Max Appeal. It was especially good to meet Harry and his family who are Max Appeal members. 
Tunnel 2 Towers Walk

Well done and thank-you to everyone who took part and supported the walk. 
Estimates for the monies raised is £1,000!!! 
Great effort by Hannah, Cerys, Debbie and Chris, and Mark and Tracey who were right behind them! 
For the full story and a piece written by Hannah, please go to:
https://www.maxappeal.org.uk/fundraising/marathons
/marathons/content.asp?s=67&p=77
A MASSIVE Thank You to Radhika McCathie - London Marathon 2015
 
A MASSIVE Thank You to Radhika McCathie 
Radhika says she "had a fab day, hard work but crowds amazing. I would consider doing it again but I think I would like to have some company for the run next time. 
I did it in 4hours and 13 mins exactly." 
Total raised £1280 to date - WOW !!! 
Thank you Radhika. 
 
Thank you to all of our volunteers and fundraisers
 
Please join us in saying a massive ‘thank you’ to our wonderful volunteers who help us in delivering support across the UK.
Research & News
NEW STUDY with GOS
 
Calling parents and carers of children and young people aged 11- 25 years
We would ask you to participate in the on-line forum to inform us about your experiences as a parent/carer of a person with 22q11DS about access to services and mental health issues. 
Please click on the link below to find out more information. 
https://www.maxappeal.org.uk/research/gos-_parent~carer_experience_forum
Or Email Claire@maxappeal.org.uk
Max Appeal Train - First Year Anniversary
 
The 25th July saw the first anniversary of our Max Appeal train... who could believe a whole year has elapsed since we named her after Max Appeal. 
Let's hope her journeys in and out of London have made alot more people aware of 22q11 DS. 
Please use your opportunities to raise awareness of 22q11 DS.
Max Appeal Christmas Card Competition
Well you probably don't want to be reminded, but it's only 19 weeks to Christmas!

We would like to offer some new Christmas Card designs for the coming festive season.
Can you help.... if you would like to enter a festive design which could be chosen as part of the Max Appeal 2016 Christmas Card series please produce your design on an A4 sheet of paper and put your name, competition group and contact details on the back of the picture. Please send to Freepost Max Appeal. Closing date for entries is 30th September, 2015.
The competition groups are;
Group A - Up to 11 years
Group B -  12 -17 years
Group C  - 18 years and over
Aaron Cooks' first snooker tournament of the season
 
Aaron Cooks' first snooker tournament of new season. It was pro am at South West Snooker Academy. 
Aaron has been practicing hard had a 72 break today. Aaron is playing in at least 50 competitions this season travelling all over the UK and even going to germany to play. 
We will keep you all updated to how he does and he's proud to show off the max appeal logo every time he plays 
Cheers for all your support he deserves a good season after all his effort in practice
Temple Newsman House, Leeds, Family Day Out - 28th June 2015
 

A damp and windy Yorkshire morning followed by a sunny afternoon met the five families who came to the Temple Newsam House (Leeds) family get together on June 28th. It was lovely meeting up with everyone with a new family joining us. The weather wasn't too kind in the morning but it came out nice in the afternoon where we took a short walk around the grounds and had a nice bun and coffee in the courtyard café. We shall arrange it for a similar time next year and hopefully the weather will be a bit kinder!
Shuttleworth Air Museum Max Appeal Family Day out - 11th August 2015
 
The Shuttleworth meet was a huge success and enjoyed by all who came, the day started at 10:30 with the kids enjoying the outdoor play area and getting some of their energy out of their systems. Well at least that was the plan but after a leisurely picnic sat watching the airplanes and helicopters come and go the kids showed their endless energy by visiting the museum and walking around the Swiss Gardens. 
I'm pleased to say that Max Appeal appears to have found a little gem in the Bedfordshire countryside. 
Volunteers Wanted
 
The Psychiatric Imaging Group at Imperial College London is looking for male and female volunteers aged between 18-65 to participate in a research project. We are looking for volunteers who are carriers of 22q11 deletion.
Please click here for further details https://www.maxappeal.org.uk/research
/kings_college_london_-_psychiatry_study?adminaction=edit
Information Ordering
PARENT/CARER & PROFESSIONAL CONSENSUS DOCUMENT
If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
http://www.maxappeal.org.uk/knowledge/consensus_document
Copies can also be downloaded.
 
Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at info@maxappeal.org.uk
Thank you
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