Newsletter 17June2015

Max Appeal July 2015

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July 2015
Update of Events, News & Information
Dear Max Appeal members, welcome to our first monthly newsletter.  We hope to keep you updated with what's happening with events and fundraising that is coming over the next month. To let you know of any important news and to remind you what Max Appeal can offer you.
If you do have any comments or queries, please email us at info@maxappeal.org.uk.
* Forthcoming events & fundraisers in June & July
* Thank you's....
* Research
* How to order Consensus documents..
* Change of contact details.......

http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=141

Family Day at Temple Newsam house Leeds.
28th June 2015 10.30am

Max Appeal Family Day At Templenewsam House Leeds.
An informal meet up at Templenewsam House in Leeds. Templenewsam is a lovely place with lots of space for the kids to run round and a big outdoor adventure park area
To find out more information go to  http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=141

http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=145


** Family Fun Day 11th July 2015 Wollaston Tennis Club Stourbridge, West Midlands
------------------------------------------------------------

Wollaston Tennis Club Stourbridge, West Midlands
Invites you to a family fun Saturday 11th July 2015 from 2pm
Come and join us for a free afternoon of fun and tennis
Featuring the Great Wollaston Bake off
BBQ - Music - Bar - Ice cream
Bouncy castle - Fastest Serve Competition
8 floodlit courts - function room
Many great donated raffle prizes. All in aid of Max Appeal
To find out more information go to http://www.maxappeal. org.uk/events/content.asp?ms=5&ei=145 (http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=145)

http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=142

The Thameslink Tracker
12th July 2015


For details of the Branch Line Society's special rail tour, go to the link below.
Max Appeal is one of the nominated charities being supported.
To find out more information go to  http://www.branchline.org.uk/events.php

http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=143

The Tunnel to Towers run/walk
19th July 2015

The tunnel to towers run is a 5km event approx 3 miles and can be run or walked, wheelchair users are welcomed as well, the route starts at South Park Bermondsey, goes through the Rotherhide Tunnel, past Billingsgate Market and finishes near Canary Wharf for an post runwalk party.
Mark Tripps' good friend Vince is on the organising committee and he has asked if Max Appeal would like to put a team together, there will be an entry fee of between £12 - £20 depending on numbers which will go to the charity, we are then free to get sponsorship for Max Appeal.
For further information go to  http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=143

http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=138

Brighton Fun Run
25th July 2015

Run for fitness, run for charity, run for fun...just run!
One of our members Vicki Faires is running to raise funds for Max Appeal.
http://www.bigfunrun.com/brighton
For further information go to http://www.maxappeal.org.uk/events/content.asp?ms=5&ei=138

https://www.maxappeal.org.uk/news/content.asp?ni=234

22k for 22q Dublin
2nd August 2015

Join Team 22k for 22q Dublin - An amazing international group of runners, walkers, and volunteers raising awareness for 22q11.2 deletion and duplication syndromes by participating in the Dublin Rock-n-Roll Half Marathon 22k or Fun Run 3k on August 2, 2015 on the beautiful Emerald Isle
Entrance closes midnight DST on July 10, 2015
For further information:
https://www.maxappeal.org.uk/news/content.asp?ni=234

A big Max Appeal Thank you to....
http://www.maxappeal.org.uk/fundraising/a_great_big_thank_you.......

Thank you Nicola Shelock
Nicola ran the Hackney Half Marathon on the 10th May and has raised a huge £800 so far...
... You may have reported "knackered legs" but you're looking great to us...

http://www.maxappeal.org.uk/fundraising/a_great_big_thank_you.......

Thank-you to the MG Car Club, East Yorkshire
Geoff and Christine Kirk are members of the MG Car Club and at this year's Wolds Way Run, East Yorkshire they raised £325 with a raffle.
Geoff and Christine were also able to give out lots of information about 22q11DS to the 94 entrants.
Thank-you to everyone who took part.

http://www.maxappeal.org.uk/fundraising/a_great_big_thank_you.......

Big Max Appeal Thank you to Matthew Dodd.... Some brilliant fundraising...
Matt ran the London Marathon 2015. In 3:15:23
He says "In terms of the marathon itself, it was an incredible experience and something which I'll never forget. The support throughout the entire route (some places were five or six people deep) was amazing and after 22 miles, this was the only thing that kept me going. It was great to have so many friends and family along the course and also to celebrate with afterwards. All in all, it was a really enjoyable day and I would definitely recommend the London Marathon to anybody considering a challenge for charity."
Matt also has been raising funds by growing his hair for 5 months, going teetotal for two and a half months, a comedy evening and a tennis tournament that included a BBQ, cake sale and raffle.
Raising an absolutely huge amazing £4054.05

Research
http://www.maxappeal.org.uk/news/content.asp?ni=221

Education and healthcare Experiences questionnaire
We are trying to find out about the educational and healthcare experiences of people diagnosed with 22q deletion syndrome.
Are you an individual with 22q deletion syndrome and over the age of 16?
Or are you a parent or carer of a person who has 22q deletion syndrome and is any age?
If so, we would like you to complete a survey.
For further information: http://www.maxappeal.org.uk/news/content.asp?ni=221

http://www.maxappeal.org.uk/news/content.asp?ni=204

Cardiff University Looking for 22q Adults
Cardiff University's ECHO study has been learning about the experiences children with 22q11.2 deletion and duplication syndromes for the past five years.
In addition to child volunteers, we are now also looking for adults with the 22q11.2 deletion or duplication to take part.
For further information:
http://www.maxappeal.org.uk/news/ content.asp?ni=204 (http://www.maxappeal.org.uk/news/content.asp?ni=204)

PARENT/CARER & PROFESSIONAL CONSENSUS DOCUMENT

If you wish to order a copy of the parent/carer or professional consensus document, please use the link below.
http://www.maxappeal.org.uk/knowledge/consensus_document
Copies can also be downloaded.



Contact Details
Please do remember to update us if you change your address, telephone number or email address so that we can keep our database correct and keep you up to date with what's happening at Max Appeal.
Please email us at info@maxappeal.org.uk
Thank you

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Archive campaign archive
Delivery Date & Time Wed, Jun 17, 2015 01:06 pm
From Name Max Appeal Steph
From Email steph@maxappeal.org.uk
Subject Line Max Appeal Newsletter June 2015
Recipients Sent to list: All members 17june15 02